Forum Post: Delayed Myelination - Share your story .
Hi all, I am a first time mom of a very beautiful baby girl, now 13months old. She was born at 34wks as she was an IUGR (Intra uterine growth restriction) baby. After birth her growth was still slow...
View ArticleForum Post: Birth Defects Awareness- My story
January is birth defects awareness month, and this is my personal experience as a birth defects parent. Please share your story here and offer support to others that may have a similar experience. In...
View ArticleForum Post: Birth Defects Awareness Month - Share Your Story
January is Birth Defects Awareness Month. Has birth defects touched your life? If so, this is a safe place to join in a discussion and/or share your story. On a hot August day, nearly 8 years ago, my...
View ArticleForum Post: Autism linked to antidepressant use survey
Hello, my name is Cheyanne Johnson. I am a senior at JW MItchell High School and am taking part in the AP Capstone Research Program in my school. As part of the program, I must conduct research on...
View ArticleForum Post: Limb defects
I'm 32 weeks pregnant with my first child and halfway through my pregnancy I found out my baby will be born with a birth defect - he is missing one of the major bones in his lower right leg. The...
View ArticleForum Post: RE: Limb defects
Hi and welcome to Share. I'm sorry you and your son are facing such a scary time. My child wasn't born with a birth defect so I don't have experience with this specific diagnosis. I am raising two...
View ArticleForum Post: RE: Limb defects
Hello and Welcome to Share- I am sorry you find yourself facing something like this in a time that should be joyful. My daughter was born with Trisomy 18, which is a fatal birth defect. During her...
View ArticleForum Post: RE: Limb defects
Hi and thank you for sharing your story. I'm sorry for what you and your baby are going through. It must be an emotional, overwhelming time. I don't have experience with birth defects, but my daughter...
View ArticleForum Post: RE: Looking for someone with a similar experience
I know how alone you can feel when dealing with a child born with a birth defect. Birth Defect Research for Children has a parent matching program that offers support from parents dealing with the same...
View ArticleForum Post: RE: Looking for someone with a similar experience
Hello and welcome to Share. I am so very sorry to hear of the loss of your beloved Kara. My first baby, Marco, was born 8 years ago at 29 weeks with multiple defects. He lived for about 4 hours before...
View ArticleForum Post: Wiedemann Steiner Syndrome
I just found out there's another family in RI with a diagnosis of my daughter's rare condition, Wiedemann Steiner Syndrome. NOW TO FIND THEM...... They aren't part of the WSS Facebook support group, I...
View ArticleForum Post: HYERCOILED CORD
Hi everyone! I am very new to this site and i just wanted to know if there had also been similar cases of what happened to my daughter 3 wks ago. Doctors said the cause of my daughter's demise at 32...
View ArticleForum Post: RE: HYERCOILED CORD
Hello and welcome to Share. I am so deeply sorry for the loss of your precious baby girl. There are no words that can take away the pain. This is definitely something that is not talked about enough. I...
View ArticleForum Post: RE: HYERCOILED CORD
Thank you. I have reached rock bottom with this loss. I cry every day and night with the slightest trigger. I get anxiety attacks just thinking about getting pregnant again. If only I can turn back...
View ArticleForum Post: Gastroschisis
We are young first parents, who found out our baby has a gastroschisis. He has been in the hospital for 24 days. We are having a lot of trouble with finding ways to visit him, have time to ourselves...
View ArticleForum Post: RE: Gastroschisis
Hello and Welcome to Share. I know this can't have been what you expected when you were preparing for your new baby boy. The best advice I can give, is to take a breath, and take every moment just like...
View ArticleForum Post: RE: Gastroschisis
Hello and Welcome to Share. I know this can't have been what you expected when you were preparing for your new baby boy. The best advice I can give, is to take a breath, and take every moment just like...
View ArticleForum Post: Terbutaline for Premature Labor
I am seeking further information regarding Learning Disabilities from taking the medication to stop premature delivery. Research shows that cognitive, speech and learning disabilities have been linked...
View ArticleForum Post: 4 months pregnancy loss. Looking for similar experience
Was 4 months pregnant. Thought everything was alright the whole time .. I went to a different OB then I usually do and the sonotech found a lot of issues. I was told to come back the next day to...
View ArticleForum Post: RE: Trying to see the positives
Hello, as my son was just diagnosed with grade 3/4 brain bleed, I have googled every site I can. VVikipedia states that only 15% of babies that are diagnosed with IVH do develop CP but there is no...
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